A Beginning? Or, an End?

I find myself wrestling with more and more each day. It feels like I am going up and down in the water, with every down pulling me further and further under to drown in the darkness before I am done.

I can’t seem to relax today. I’ve always had so much to do. I have put so much into taking care of my wife and her condition (the one she refuses to admit she has) and I have done my best to do right by her. But she has her own set of reactions to this that continually makes me question that I even know what the f**k I am doing. To shorten this story – I DON’T know what I am doing. And that scares me to death.

What I am as a person – a human being – is getting more and more difficult to hang on to. I feel angry a lot of the time. I don’t like that at all. I am not angry at my wife (I still live her…a lot.) I am angry at the world around me. I am angry at the “medical profession” that cast us adrift in this river without a paddle. I have no knowledge of the dementia condition, no knowledge of how to care for someone with the condition, no help or guidance from ANYONE – medical, family, or otherwise – I am fucking on my own with a bag full of “thoughts and prayers.”

My wife’s “doctor” basically dumped us when she noticed the dementia symptoms. She is a “naturopathic doctor” which means she doesn’t know shit about general medicine. She’s a damned doula. All she knows is “birthin’ babies” for Christ sake. Anytime she dealt with us, she had to run home and look up the condition in her medical books. She eventually told me to contact DSHS and get them to assign a caseworker to help us. Helpful hint to you – NEVER go to a naturopath. They are useless.

Any time I’ve ever contacted a state organization or support group, all I get are a buttload of other phone numbers and websites – tons of them. And when I logged on to a caregiver support group, I was bombarded with chats and posts with so much lingo and terminology-filled conversations, I did not have the time to get a medical education to understand the double-talk I was seeing.

Her useless sisters (thoughts and prayers) just give me lists of things I needed to do, get or make happen. Sure, I’ll add that to my list of 1,000 things I need to get done each day. Sure, they are both retired and living on the east coast (boo-fucking-hoo.) I have easily got 36 hours or tasks to do in a 24 hour day. That’s on top of cleaning, changing her, washing, cleaning house (failing miserably), providing food, handling financial matters, insurance, medical, entertainment, feeding cats, looking for a job, trying to make more money (we are living on my SS alone as she is doesn’t qualify for hers for 3 more years!), dealing with my own health issues (both physical and mental).

Now, I’ve been trying to locate some of her past acquaintances to reconnect her with her friends she let slip away. She is so lonely and gets so angry with me, that she wants to go someplace “where people me.” She is tired of me, but I do realize that it’s this disease talking. Her angry outbursts are more hurtful and harder not to react to. She doesn’t want to admit she has this condition.

I’ve got to stop for now.

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Darkness Comes Again

In my exhaustion, I lose my ability to make sense of what I am.

Why am I supposed to have all of the answers to life’s questions? My wife seems to think so. She gets pissed off and angry if I don’t.

It’s putting me in a very, very, very dark place again.

Now, the doctor’s find indications of “dementia” in my wife memory episodes. I have been fearing this for a while, but I was lost as to how to get help for her (and I.) The details that I was dealing with aside, it really came to light in a surgical procedure she had done. She became very agitated when she was coming out of the anesthetic and became very combative to the recovery ward staff. I spent a late night there with them trying to get her to calm down and sleep – And it scared me to death.

Time does pass…albeit slowly but surely. Most of the time, I find my inner voices constantly telling me that I don’t know what I am doing in dealing with this “situation.” I am so drained that I can only nod in agreement. I am also fearful that I am probably doing more harm than good. More often than not, it’s her that says “I want a divorce.” My response has become “Too bad. You’re not getting one.” And she leaves it at that. I take my wedding vows seriously – I really don’t know what she does these days.

Her anger is usually gone shortly after each episode. And I know that her yelling and vitriol is something that she can’t always control (as she says.) We’ve made the first try with a neurologist to make an assessment of her condition (per her “doctor”) which wasn’t too productive because Ann got angry and walked out of the office before anything could be finished. She refuses to accept what this condition could truly be (dementia, et al) as compared to her belief that she doesn’t get good sleep due to the severe hip pain she’s had for so long, making her tired. I don’t know why she thinks she doesn’t get good sleep – as I see it, she is in bed for around 8 to 9 hours a night.

She is as stubborn as her dad was. And as mean in her anger towards me as he probably was to her when she was growing up. I can’t imagine what she had to put up with in dealing with them. But this is destroying me. I am happy to take care of her as much as she needs for whatever the outcome of this is. But right now I am an empty shell of a person, bereft of feelings, emotions, thoughts and missing a spark for my spirit. I have been subsumed by this situation, this disease and I am afraid of where my path will take me. That is, if I have any hope of making it through this alive.

I have nobody to talk to, to help me, to guide me or even just be on my side. Even if I did, I can’t let them into the entirety of my world. This is just too much for me to let out to anyone on this planet that I even care about remotely. It’s just too much for anyone to deal with and I wouldn’t wish it on them. I live here. I barely make it through each time I’ve found my spirit here by shear luck. I don’t know if I can keep enjoying that kind of luck.

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Running Out Of Time

I am another year older.

I am always tired (it seems.)

People are thinking “what good is this guy?”

They think I am useless.

I don’t fucking matter anymore.

Why am I even trying?

What good am I to the world?

What do I have to give? To contribute to humanity…I can’t think of anything…

I am through wasting everyone’s time.

What did I do wrong?

The world doesn’t wait for anyone

…least of all, me.

I drink when this darkness comes – tonight, am 48 oz into a six-pack of PBR 16’s.

It diffuses the pain for a short period

It dulls my mind

But the sadness remains

Time for another

It’s time

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Fear

I am writing this out of pure, unadulterated, chest-clenching fright.

I can’t think of what else to do.

My mind is not helping me. My heart is a dark and sad place. My soul is a tired and empty shell of what it once was.

I fear the death spiral. Stepping across that chasm and into the darkness.

I am alone.

I truly don’t know what I am doing most days. But I am doing everything – and I mean everything. I have nothing left to give. Except, maybe, anger. Anger to the rest of the world that has played some part in this…this…”scenario.”

I am so scared of making a mistake. I feel like my hands are tied as I watch this play out before my eyes.

What do I have to fucking do? Have I lost my ability to deal with this bullshit world? Maybe not so much the “ability” as it is the “desire” to deal with it. My exhaustion is so complete and all-encompassing, it equates to the drought we are putting our planet through right now. It’s like they are connected.

It’s an on-going internal conflict that I’ve dealt with most of my adult life.

I am waiting for a meeting to discuss some issues related to work and questions about my capabilities. My colleague tells me to my face that he strongly supports me. I get the same from my boss (why else would I get the nice salary bump I got?) I feel comfortable in my skills, knowledge and professional abilities. But I am now deathly afraid of how dark my mind has gotten. I don’t know what to expect. Death would be a welcome respite from these feelings. The quick solution. But I can’t leave Ann at a time like this. Who would take care of her if I was gone? I love her so much. I can’t leave her like this.

How the fuck am I supposed to deal with these feelings? What happened to my courage? When did my fear desert me? How do I keep going when I have nothing left inside to power my efforts? Am I not giving enough to this process? HOW AM I SUPPOSED TO LIVE LIKE THIS?

I am in pain, it seems, nearly all the time.

Why?

What have I done to warrant this feeling?

It’s so habitual – I’ve probably done it to myself. In fact, it is self-inflicted.

I’m mentally exhausted, so that doesn’t help.

Am I THAT one-dimensional?

I REALLY don’t know what the fuck to do.

I can just sit here and stare off into space…I do that a lot.

I.

Just.

Exist.

Why?

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Feelings

Are we still allowed to have them?

Do feelings = emotions?

Are they supposed to hurt this much?

Am I supposed to respect the feelings of others? If so, why?

Are we entitled to that same degree of respect from others for our feelings?

How do civility and manners apply?

In dealing with feelings (others or our own) what is right?

If my feelings have been burned often enough (by life, by others, for what ever reason, etc.,) how are we supposed to live as a human being?

This feeling of sadness is extremely painful to me. I am extremely frightened of being hurt again. I am to the point where I would do just about anything to stop this pain.

I can’t deal with this any more.

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Observation the Final

I can’t do this anymore.

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Observations 2

What is happening to me?

Why does my mindset change so drastically when I lease expect or need it to?

I was going through my Saturday, when I was struck by such a profound sense of sadness that it felt like someone turned off the lights and I was sitting alone in the cold, dark world. I’ve had that feeling happen to me before, but each time it seems to be more of a shock to my being than the time before.

I feel as if nobody likes me or wants me around.

Like I have no place where I really “belong.”

Nobody gives a sh*t.

I am filled with an empty darkness that envelops my spirit.

I don’t know how to move, let alone which direction to go in the blackness.

I find myself starting to curse God, but then realizing that this is all my fault.

Then I curse myself for getting into this to begin with. My self-anger continues to well up inside of me, building on this mountain of self-hatred, the fight-or-flight instinct builds until…

I literally feel my spirit break.

I suddenly cut myself loose from the rest of humanity – casting myself adrift in the greater expanse of the universe. The flood of reasons drench me like a waterfall…

People never learn.

When did “intelligence” become a dirty word?

Where has humanity gone?

Why do some people take from others what is not theirs?

How are we supposed to grow a society when it is built on shaming others into action? Even retroactively, it does nothing more than to put one group above another when we are all part of the same race inhabiting our fragile planet.

If life is such a miracle, then why does it have to be legislated? Everyone’s body is their own business.

We all deserve basic human respect and consideration. So, why are we killing each other in ever-increasing numbers in the name of preserving the “rights” to own the machines that kill?

When we all are deserving of intaking the foods of the Earth’s bounty, breathing the same air, drinking the same water -why do we constantly act in a manner that kills the very planet we share?

If nobody gives a sh*t – then why should I?

The emotional build-up inside me is sated – allowing me to breathe for a few peaceful moments. It is quickly replaced by the sadness for the family and loved ones I leave behind.

Then I am yanked back to the same harsh and painful reality I just left – and nothing has changed.

The cycle starts again…

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Observation 9/21/22

Why do others demands on my time always seem to usurp my own? Do you feel that way?

Or, is it just me?

And, when I stand up for myself to address my needs first, people feel offended. What’s up with that?

I’m a firm believer in personal accountability and standing up for yourself. Does that make me any less of a person than anyone else? When people say that I have to stand up for Democracy, or feel righteous indignation about the plight about frogs in the Bornean rainforest, or feel bad about the treatment of some group of people somewhere in the world, or support some group raising money to fight a disease or right a wrong, or…you name it, will I? Yes, I will.

Will I suffer to make a “statement?” Probably not. I don’t know.

I do know that I have to save something for myself – to live and sustain the fire that burns inside of me that makes who I truly am. Society that feeds off of it’s human life-blood can’t survive for long without caring for it’s own substance. Yes, self-care.

This past week, a colleague told me that I “shouldn’t take things personally.” That phrase is crap. Whatever something is has to start off by being personal. Too many people (including this colleague) use that statement to silence a person’s response and allow them to be walked on in any particular situation. I don’t buy that b.s. and I will call them on it.

Am I wrong?

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Observations

The complexities we accept into our lives from the world around us today feels like another pebble being shoveled in on top of me, burying my true self and causing my being to change. Too many of us have allowed that to happen, diluting our humanity and who we truly are is lost to the world.

The real trick is not letting that happen.

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Stops and Starts

It’s been a while since I’ve last posted anything. When I logged back in, I noticed that I had a couple of things still “in process” that go back to mid last year. I feel a bit of frustration when that happens – like I am presenting an unfinished thought…and that has begun to bother me more these days. It says “disorganization” to me in the most in-your-face way possible. And, most days, I don’t need that.

My life as a total feels disorganized. And it’s felt that way for some time now. It’s not just because of the pandemic. Or anything political. Or climate change. Or neo-Nazis.

It’s all of it…and more.

What this world has become has severely diminished the humanity we used to cultivate – as if the oxygen has been sucked out of the atmosphere, killing everything we’ve worked so hard to nurture and grow. Things are moving faster and faster to satisfy some sick sense of immediate information gratification, to sate their appetite for attention with access to the Internet to put their ignorant, lie-based cuisine of their own contrived “facts” (read LIES.)

Anyone else tired of this?

Things are broken down into smaller and smaller tasks or pieces – I have no idea why.

And here I go again – it’s been a month since I wrote everything above this line of text. A part of this has to be due to my mental state – living with the “burnout” we are all dealing with. I have it. You have it.

Yes, you do.

It’s the loss of patience. It’s in the diminished capacity to be understanding and compassionate. It’s all covered in a thick layer of ambivalence. We all have felt it, to some degree or level at some time over the past 2 years.

The real question is “what are you going to do about it?”

I sure hope someone has the answer to that, because I sure don’t know.

I am so far under the water that I can’t find the way up.

And I have ZERO energy to keep paddling.

My head is so full of “noise” that I can’t hear my own heartbeat.

I have NOTHING LEFT to give.

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