I find myself wrestling with more and more each day. It feels like I am going up and down in the water, with every down pulling me further and further under to drown in the darkness before I am done.
I can’t seem to relax today. I’ve always had so much to do. I have put so much into taking care of my wife and her condition (the one she refuses to admit she has) and I have done my best to do right by her. But she has her own set of reactions to this that continually makes me question that I even know what the f**k I am doing. To shorten this story – I DON’T know what I am doing. And that scares me to death.
What I am as a person – a human being – is getting more and more difficult to hang on to. I feel angry a lot of the time. I don’t like that at all. I am not angry at my wife (I still live her…a lot.) I am angry at the world around me. I am angry at the “medical profession” that cast us adrift in this river without a paddle. I have no knowledge of the dementia condition, no knowledge of how to care for someone with the condition, no help or guidance from ANYONE – medical, family, or otherwise – I am fucking on my own with a bag full of “thoughts and prayers.”
My wife’s “doctor” basically dumped us when she noticed the dementia symptoms. She is a “naturopathic doctor” which means she doesn’t know shit about general medicine. She’s a damned doula. All she knows is “birthin’ babies” for Christ sake. Anytime she dealt with us, she had to run home and look up the condition in her medical books. She eventually told me to contact DSHS and get them to assign a caseworker to help us. Helpful hint to you – NEVER go to a naturopath. They are useless.
Any time I’ve ever contacted a state organization or support group, all I get are a buttload of other phone numbers and websites – tons of them. And when I logged on to a caregiver support group, I was bombarded with chats and posts with so much lingo and terminology-filled conversations, I did not have the time to get a medical education to understand the double-talk I was seeing.
Her useless sisters (thoughts and prayers) just give me lists of things I needed to do, get or make happen. Sure, I’ll add that to my list of 1,000 things I need to get done each day. Sure, they are both retired and living on the east coast (boo-fucking-hoo.) I have easily got 36 hours or tasks to do in a 24 hour day. That’s on top of cleaning, changing her, washing, cleaning house (failing miserably), providing food, handling financial matters, insurance, medical, entertainment, feeding cats, looking for a job, trying to make more money (we are living on my SS alone as she is doesn’t qualify for hers for 3 more years!), dealing with my own health issues (both physical and mental).
Now, I’ve been trying to locate some of her past acquaintances to reconnect her with her friends she let slip away. She is so lonely and gets so angry with me, that she wants to go someplace “where people me.” She is tired of me, but I do realize that it’s this disease talking. Her angry outbursts are more hurtful and harder not to react to. She doesn’t want to admit she has this condition.
I’ve got to stop for now.


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